This book was a good read. Sad at times, but made me realize just how devestating this disease can be. I read it in 1 day.
This little girl's story will touch your heart.
This is an excellent book following the life of Alexandra Deford, a child with Cystic Fibrosis. I enjoyed it (although it is not a light read), and learned a great deal about the experience of this disease, for both patient and family.
I have read this book several times. This book was written by Alex's father, Frank Deford. Alex's story is one of courage and sadness...it is about one little girl's battle with Cystic Fibrosis, the number one genetic killer of children. (from front)Grab the tissues-it stays with you for a long time.
A beautiful story of a brave little girl...a must read.
I thought this book was really interesting although I do believe that there was alot of bias in the way the father viewed Alex. And, who wouldn't be biased, I suppose? But, he made her out to be an angel and no person ever is. I did enjoy the book and learned alot about Cystic Fibrosis. He done a very good job of writing this book and making it interesting.
sad story. very well written....as a mother with a child that lives with CF it is a reminder of how far we have come with treatments and possibilities.
I enjoyed the book. It gave a personal insight into the family life of someone with a terminally ill child. My college advisor said it was a must read for those helping children with disabilities.