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Topic: So happy to see so much actiity flourishing among the ouchie friends!!!

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Subject: So happy to see so much actiity flourishing among the ouchie friends!!!
Date Posted: 10/8/2007 1:35 PM ET
Member Since: 11/14/2005
Posts: 6,421
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When I first started getting you people to come over here and share your aches and pains and woes and troubles. I wasn't sure how long it would last, but it surely has done amazingly well! You have branched out nicely into some side topics, and been supporting each other right along. Even if I did disappear on your shortly after I got you started! hahahaha  I'm sure you've all seen me around so you know I must be surviving, and I am. But, I thought it was time I actually had a sit-down and share with you all.

First a good note for me. As most of you know, I have no insurance, no government subsity/assistance of any kind, not even free meds from the companies because they all seem to think I should quality for Med Part D, which I don't because I don't quality for Medicare, because Hubby's disability is over 950+.

Anyway, one of the pain meds I took last year, went generic a while back, but was still pretty expensive, so I wouldn't take it. If you need assistance with meds. Be sure to check out Walmart's $4 drug list. On Sept 26, last month, they just added a whole bunch more meds to the list. And praise be to the Lord, my pain med is on the new list!!!

I've also been taking 4-6 Aleve (generic drug store brand) every day. Well, I saw that those are avaiable on the $4 list also, so I asked the DR if I could have those instead of the OTC 1. because they are cheaper, 2. because they are a tad stronger. He agreed and gave me the script for my Meloxicam (Mobic).

I have to be pretty regular about taking them, I can feel a distinct pain in my neck/shoulder when they start to wear off, but in between. It is almost as good as a miracle! I still fatique severly, and hurt overall if I do too much, but a lot of that will ease off with time, as I have enough pain subsided to start to build up some endurance again!

I am sooooo very happy! And new just were to come and share :)

While I'm here, someone, I forget who, runs another CFS group, I believe it is. And we talked about starting a FaceBook group for us. I think we are ready for it now. If that person will contact me, it will had some fun and pleasure to the group. Facebook is a place to just go and be silly, and act like kids again. We have established our place to be serious and discuss our meds, pains, treatments, now lets go have some fun too!!!

Blessings to each and everyone of you, as much as sharing your loads to get them off your own shoulders helps you, so does allowing another to help support you and shoulder that burden of yours. It makes their own load lighter simply because they do not concentrate on it as much, but focus on your for a bit. Keep sharing everybody, you are all wonderful people!

Date Posted: 10/8/2007 2:36 PM ET
Member Since: 4/27/2007
Posts: 3,596
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Sherry, it is good to hear from you!  I had wondered about you, and I am glad to know that you can get your meds now and that they are helping!  Let us all know if you get the Facebook started!

Date Posted: 10/8/2007 2:51 PM ET
Member Since: 9/23/2006
Posts: 6,362
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I'm happy for you, Sherry.  What strength of Mobic do you take?  They switched me to the 15 mg strength without any real good reason that we could see, but it didn't appear that it had any more side effects (from the published data).  I was going to see about switching back, but forgot last time.

This is something I take mostly when my back gets too bad so I try not to take it too much (that's why I thought it might be the culprit in the swelling and I'm weird so no one else should worry).  I took Feldene for a long time with no problems but they seem to think all these other things are better.  I've been taking it about every day lately though.

Well, I'm certainly happy that it's working out for you anyway.  Even with insurance, mine do add up somewhat although I'm lucky (?).

Date Posted: 10/8/2007 3:42 PM ET
Member Since: 11/14/2005
Posts: 6,421
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Diana, I have the 15s but, I cut them in half. I could have gotten the 7.5, but it would have been the same $4, so the DR gave me the 15, and said to cut them in half, unless I really felt I needed a whole one. So far, combined with the Naproxen, they have been doing really great!

Lindsey, I'll be sure to let everybody know, as soon as I figure out who it was. She runs a couple other CF and such forums and boards, and so already knows the ropes over on Facebook. I'm sure she will pop in here soon. My mind is just drawing a blank right now. That Fibro Foggy Brain thing! hahahaha Thanks for thinking of me. I've just been keeping busy, what with the cookbook, the data correction team, and now I signedup to be a Tour Guide!!! Am I nuts or what!!! hahahahaha

Date Posted: 10/8/2007 6:31 PM ET
Member Since: 9/23/2006
Posts: 6,362
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Thanks, Sherry.  I don't know why I didn't consider that since I cut up so many others.  (Although I'd prefer not to cut another pill!)

It was very strange that day.  We saw a different doctor and she talked to me and then prescribed the higher dosage.  I asked DH if he thought I'd said anything that would lead her to think the 7.5 wasn't okay and he said no (he's usually not esp. supportive either).  I wasn't taking them at all but then I started having trouble rolling out of bed (back).  Sometimes I do think they bother my stomach a little although it's seemed okay recently.

Date Posted: 10/10/2007 3:55 AM ET
Member Since: 9/30/2006
Posts: 6,885
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Sherry - it is good to hear from you!!  I am glad that you are doing better.  I have been sending PM's to some of our old time ouchie buddies who we haven't heard from in a while.  While we don't want to pester people, maybe we should do that from time to time.  It is awful to be out there dealing with chronic pain/illnesses alone.  I just hope they don't feel like they are just complaining and don't want to "burden" anybody anymore.  As everyone notices, I'm sure, I think it is good to talk about your problems.  Pretty soon I expect someone to send me a PM asking me if I would like some cheese with that whine.  :)

I just responded to Diana's issue about her feet swelling in her topic, but I want to chime in here about the Mobic.  Not being really familiar with it, I checked my on-line PDR to get some info about it. As you all know, Mobic is an NSAID, like Ibuprofen, Aleve, Naproxen, Aspirin, etc.  It has always been my understanding, in practice and personally, that if you are taking one NSAID, you should not take another due to increasing your risk for side effects.  So if you take Mobic, you should not also take any other OTC NSAID such as Motrin, Aleve, etc., generic or otherwise.  I got concerned about this Sherry, when you mentioned that you take both Mobric and Naproxen.  Both of these drugs can cause internal bleeding, elevated blood pressure, worsening of already high blood pressure, and increase the risks of clots, heart attack and stroke.  Mobic particularly cause water retention, like folks on Diana's topic mentioned.  But the directions also say that if this happens, to contact your doctor. 

Having said all that, you all have doctors who know your conditions well, which I of course don't, but if they are prescribing more than one NSAID for you it would be worth a double check just to make sure it is okay to do so.  If you are taking an NSAID on your own OTC, ask your doc's permission before you do.

Everyone has to deal with so many issues with chronic pain or chronic disease, I'm just concerned about all of you running the risk of developing more problems. So that is my two cents on the topic.   :)

Date Posted: 10/18/2007 9:17 AM ET
Member Since: 6/27/2007
Posts: 1,070
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I can take the over the counter stuff and it does not work for me at all, I have even tried the ibufrofin 800's and they dont do nothing either, so I guess I will be stuck with the narcotics, good thing they don't make me sleepy! I just wish I didn't have to hurt all the time!
Date Posted: 10/19/2007 9:39 AM ET
Member Since: 9/30/2006
Posts: 6,885
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Susan, there are other prescription NSAID's out there which may help you.  I agree about the Ibuprofen not helping much (plus it makes my stomach unhappy).  I have been taking Clinoril for quite awhile which was prescribed for me and that seems to work better and is much easier on the stomach.  Unfortunately it hasn't worked completely on my foot, so I also have to take a mild narcotic.  Check with your doc!