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Topic: PCOS

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Subject: PCOS
Date Posted: 7/9/2008 9:48 AM ET
Member Since: 7/23/2007
Posts: 1,453
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I was recently diagnosed with PCOS. I can't believe how common this is and yet I knew nothing about it. I have been to a new doctor and he is ticked this wasn't caught before. I've been showing signs of this since I was 13. I really wanted a big family but with all these issues our time is running out.

Who has it? How long have you known? What meds are you on? Did you have kids? How many? Any info anyone is willing to share would be great. I've been doing a lot of research but I want to hear real people's stories.

Date Posted: 7/9/2008 2:00 PM ET
Member Since: 6/24/2007
Posts: 415
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I have it.  Had cysts that I had to be given hormones to get rid of in my 20s, irregular periods, was put on birth control to control periods.  I'm the only person I know who missed a period while on birth control (no, no chance of being pregnant, at all).  Have known, personally, since around 26 when my new best friend had it and described the symptoms.  Was officially diagnosed around 32 or 33.  Started having irregular bleeding despite the BC, just before my wedding when I was 30 years old.  Thought it was stress or had been on the same BC for too long.  Tried others, continued having problems.  Became lots of bleeding, flooding, pain. 

Went to an endocronologist.  Told him my symptoms, period issues, thinning hair, facial hair, overweight, oily skin.  He said I had it and prescribed metformin.  He said that it helped people loose weight.  I gained 15 pounds over 6 months.  He said that wasn't supposed to happen and took me off of them.  After all the problems, dr appts, pain, I asked for a recommendation for a doctor who would do a hysterectomy.  I used to think I wanted kids, but decided I had had enough done in that area of my body.  I also don't think I could have dealt with a miscarriage, or the disappointment of trying time and time again to conceive. 

So, I had a hysterectomy.  I lost 40 lbs over the next year?  without dieting.  I ate what I wanted and finally felt full.  Previously I always craved things like people do right before their period.  My endocronologist then said I should just keep doing what I was doing because I had lost weight.  I am sure it was due to the change in hormones in my body.   My hair started getting thicker, felt better.  I have still kept off around 30 lbs of the weight, but am still very overweight.  My body seems to be adjusting and my hair is getting thinner again. 

I think I may still have thyroid issues or just PCOS issues that need to be addressed.  Have recently read that my dr. only looked at one number on the thyroid tests and other tests can be done to look at the complete story.  My endo didn't seem to want to do much else and I don't know who to go to.  I talked to the physicians assistant at my last years annual exam and she said she wouldn't do the thyroid testing because it was expensive.  That I should go back to the endo.  I don't see why cost would be an issue if I have insurance and am willing to pay for it.   Also, my family has thyroid problems,  Mother, Aunt, Cousins. all are on (or my Mom should be) on medication for thyroid.

I have really had a round with it all, and I wish you luck.  I can't even help you with the being pregant issues, at all. 

What were they symptoms you started showing at 13?  Just curious, I probably had them, too.

Date Posted: 7/9/2008 4:45 PM ET
Member Since: 7/23/2007
Posts: 1,453
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Thank you for sharing your story Cindy, I really appreciate it.

I have not been to a specialist yet, a good friend of mine is a physicians assistant and she's been doing the blood work and stuff for me so it'll save me a bit of money.

I started my period when I was 11 and in about a year I gained 20lbs. I had my thyroid tested and it was fine. I was always in 3-4 for sports in school and still couldn't loose the weight. By the time I was 13 I was having no more than 6-7 periods a year. When I did have a period it was heavy bleeding. My hair started thinning shortly before my 15th birthday. I had 3 miscairages in 3 years (16-19) I finally got pregnant with my son when I was 19 but he was very early. In the last year or so the syptoms have been starting to come back, and they are worse.

As I said in my OP I didn't even know about this or I might have spoken up sooner. A friend of mine who used to be a pharmaceutical rep and counsel women with this suggested I had it. I talk to my other friend (the PA) and she said that she suspected it but wanted to do some blood work before she said anything.

I think she mentioned she wants to try and put me on Metformin. I was hoping it would help with some of my weight issues, as my Gyno says I need to loose weight if I want a healthy pregnancy. Do you know why it didn't work for you?

Date Posted: 7/9/2008 5:49 PM ET
Member Since: 6/24/2007
Posts: 415
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You're welcome.  I know how it is to be frustrated and confused about this stuff.

I don't think I had all of those symptoms.  I had regular periods until my 20s.  I did have some facial hairgrowth in my teens, and have been heavy since I grew breasts, at least.  My hair didn't thin until I was in my 30s, am 35 now. 

I had never tried to get pregnant, waited to have sex until I was married at 30. (yes, it was a looong wait.  LOL) When we got married and I was already having trouble, we didn't try.  We got married, I had my first period after the wedding and it lasted for 5 weeks!!  I was about to go crazy.  I was at first told it could be due to the change in bC, and it may not be regular for a few months.  I then called back saying I can't do this anymore, and was told that wasn't what she meant/ didn't realize it was everyday and not breakthough bleeding.  They gave me something to stop the bleeding, can't remember what now.

I don't know why the metformin didn't work for me.  The doctor just said that wasn't supposed to happen.  That is partly why I suspect I may have thyroid or other issues.   But then, I react weird to some other things.  Nyquil keeps me up all night, etc.  My dad is told he reacts different to meds as well.   My mom was woken up between labor pains to be given a sleeping pill that then kept her awake.  Maybe we are just weird.

By the way, I checked out where you live so I could come visit your dr. if it was close, it's not.  :-(

ETA:  I did miss periods a year or so after my cyst.  I was afraid I might have another and an impatient dr. put me on the BC because I couldn't keep running over there for irregular periods, even though that was my first round of it.  I am convinced I would have more irregular if not for the pills.  Had another dr. tell me that I wasn't ovulating.  Which would most likely would have then not led to a period.  Don't know.



Last Edited on: 7/9/08 5:53 PM ET - Total times edited: 1
L. G. (L)
Date Posted: 7/11/2008 4:56 AM ET
Member Since: 9/5/2005
Posts: 12,412
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Hi Sarah,

Check out soulcysters.com.  I knew the founder, Kat,  way back when PCOS was just given a name.  Kat has a *ton* of great info on there, and she keeps abreast of all of the new information for us PCOSers.

I have had PCOS all my life (since puberty)  and self-diagnosed back in 1995 - I have every symptom - facial hair growth, no periods, weight gain which can't be lost, etc.  I sought out the doc doing research on Glucophage (Metformin) for the treatment of PCOS (Charles J. Glueck) and became one of his first research subjects.  If you can tolerate it, Glucophage is one of the best drugs on the market for controlling the disease.  Plus, you *will* lose weight while on it!

Unfortunately I can't tolerate it anymore - major GI issues.  So I am stuck on BCP until I go into full-blown menopause.  Fun, fun.  If you are not actively TTC you should be on BCP at all times unless medically impossible.  The BCP will keep your ovaries in stasis and will prevent the cysts from forming.

The bad news is -  you most likely *will* need medical intervention to get pregnant.  Do not delay seeking a fertility specialist.  Many women with PCOS get pregnant and carry to term, which is the encouraging news.  I ovulated using clomid and injectibles - injectibles giving the best results.  Many women with PCOS have blood clotting issues (too much clotting), because we have mutations in one or more clotting factor genes.  Early miscarriage is usually the result.  As part of the study, I was diagnosed with one of the mutations and despite supportive care, I could never carry to term.  We ended up adopting instead of going to IVF for a number of reasons - my advancing age (I was close to 39), my inability to carry to term, ethical concerns, and also my DH has male factor.  For us IVF was going to be $22,000.00, and 12 weeks of bedrest post-transfer, with no guarantees.  We took the sure bet and adopted.  Couldn't be happier! :)

Anyway, that's it in a nutshell.  Good luck to you - feel free to PM me anytime.  I've battled it a long time.  It stinks!

 



Last Edited on: 7/11/08 4:58 AM ET - Total times edited: 1
Date Posted: 7/12/2008 3:17 PM ET
Member Since: 7/23/2007
Posts: 1,453
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L, Thank you so much for the information. I will check out the website when I get a bit more time (I snuck on while DH wasn't paying attention ;-) ).

Both my friends that have knowledge with this have said since I have had a child that it's promising I can carry far enough again. After I had DS my symptoms are worse than ever so we are really trying to get one more child. Hubby will be 30 this year and doesn't want to wait much longer.

L. G. (L)
Date Posted: 7/14/2008 12:45 AM ET
Member Since: 9/5/2005
Posts: 12,412
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Good luck!  Since you have had one child, your chances are good.  Be sure to have your DH tested as well, though, even if he has a child already.  Fertility changes with age.  We spent 2.5 years in treatment thinking DH's sperm was ok.  When we had it retested during IVF pretesting, we found out it wasn't ok.  The first lab apparently messed up the results or switched samples.  It was a horrible situation, all the way around.

 

 

 

Date Posted: 7/14/2008 12:32 PM ET
Member Since: 5/16/2007
Posts: 245
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I too have PCOS with many of the symptoms.  I was lucky enough to have three children in my early 20's.  My PCOS got much much worse after my youngest.  I actually had one endocronologist tell me that I had PCOS but just to live with it and did nothing to treat it.  That was 5-6 yrs ago.  Two yrs after that, we decided to have another child.  It has been almost three yrs and no baby for us.  My new dr about flipped when he found out what the other dr said and I have been treated for PCOS with metformin xr b/c I could not handle the regular metformin.  Not sure if we will ever be blessed with another child.  I just wish I started treatment long before I did.  Still trying to get my hormones all straightened out.  I second the Soul Cysters site.  It is amazing!  GL!!!

Date Posted: 7/16/2008 12:05 PM ET
Member Since: 7/2/2005
Posts: 3,444
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Sarah, How were you diagnosed?

After reading an article on PCOS last night in a magazine, I realized I have many of the PCOS symptoms and I wonder how to go about getting tested for it? 

I am now 42.  I started my period at 12, but was always irregular.  It was kind of nice because I never had a period during the summer.  Not sure what the season had to do with it, but it was nice not to have to deal with it.  When I 19 I started having pelvic pain and the doctor diagnosed me with endrometrisis and said it could affect my future furtility.  When I was 21 I was able to get quickly pregnant after trying for a few weeks and assumed the dr didn't know crap.   The pregnancy went fine, gained lots of weight - no gestational diabetes.   Lost about half of the weight I had gained (kept about 30lbs).

We started on number 2 when my daughter was 18 months.  My periods were very irregular so I took a CMBBT class at the recommendation of a friend.  My monthly temperature charts were more like quarterly charts, but after two years I caught the ovulation on time and got pregnant with #2.   I was told that I was very lucky to get pregnant, but again thought the dr. didn't know crap.  I again gained lots of weight and developed borderline gestational diabetes.  Again only lost about half of the weight (kept an additional 30lbs)

About five years after my 2nd was born, I started having the pelvic pain and clotting so they put me on the bc pill.  Years after that I quit taking the pill and was ok for a few more years.    Last year at 40 my cramps and huge clotting got to much for me so I went back to the gyno and got back on the pill.  They found a fibroid, but I don't believe they found any cysts on my ovaries.  I have the option of living with the cramps (they are bearable if I take prescription strength naproxim a few days before i start my period), have an abolation (destroy the endo lining) or have a hysterictomy.  I am bearing it out for now.

On to the other symptoms.  I am about 90lbs over weight and just cannot lose weight.  If I stick with a healthy plan I am usually able to lose 20-25lb then stop losing.  I can exercise and it never seems to help with weightloss.  I regularly walk almost every day.  No one in my household of DH, DD's and my mom are even close to overweight.  For the most part we have always enjoyed healthly food.  I don't own a deep fryer and we love vegetables.  My garden is going to get a workout this year...

I now have to shave or wax my chin on a regular basis to get rid of the course black hair that is gradually increasing.  It takes to long each morning to keep plucking them, there are just too many.

The last health workup (done at a health fair at work)showed me borderline diabetic, borderline high BP, and a  high triglercide level.  This was during one of my weight watchers phases when I had just lost 20lbs and was following the core plan with very little carbs and tons of veg/fruit.  I was jogging (or more like jiggling) up to three miles on the treadmill/elipital 4-5 days a week in addition to the walking I have to do at work - and if the numbers were borderline then,  I can't imagine what they are now that over the year I have gained back 18 of those 20lbs.

So, should I pursue this with my family doctor or do I see a different type of specialist.   

 



Last Edited on: 7/16/08 12:10 PM ET - Total times edited: 2
Date Posted: 7/17/2008 5:55 AM ET
Member Since: 3/23/2008
Posts: 1,610
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I have PCOS. I had my first period about age 12. After that it was never regular. Maybe 4-8 a year. Had fertility issues but didn't worry about it at the time because we were young. I married at 18.

I didn't concieve DD until I was 20, had her at 21. Not long after having her, I had abd pain frequently and Dr. did an ultrasound and saw cysts on my overies. She diagnosed me with ovarian cysts/PCOS then. Didn't do anything for it (back in 1998).

By then I had put on about 60 pounds with the pregnancy and it wouldn't come off no matter what I did. We weren't trying to concieve, but it was a very long 5 + years before I got pregnant again. This time with Sarah. Sarah died a little before 3 months of age. DH fell asleep while holding her when I was at a dog show. I gained even more weight. When carrying her I had a host of problems that werent caught, but she was healthy. Needless to say the weight ballooned and I have yet to get it off. During the C-Section the dr saw the cysts and everything else and made the official diagnosis. Put me on Metformin. I am not a failthful pill taker though and after about 4 months stopped. Didn't see improvement in my mind, just a really upst GI tract.

I had had my tubes tied with Sarah's C-Section but we decided we wanted a baby. We went the IVF route. Doing IVF and having PCOS... We were lucky. Most women without PCOS when going through the treatments produce 10-30 eggs. I made 3. We didn't have much hope but are now blessed with fraternal twin girls.

I ended up having a pulmonary embolism last year that Dr said should have killed me (I walked around for almost a week) and a couple of DVTs. Have no real reason for it, and Dr suspects PCOS again.

I have all the "normal" symptoms. Weight that won't come off. Acne/pimples. Excess hair on face/arms. Discoloration/darker skin around the neck/groin. "String of Pearl" Cysts on the overies. Thinning hair on head (falls out in handfulls). Skin tags. Dandruff. Heavy periods that last forever when I do have a period (maybe 1 every 3-4 months). Sleep problems. fertility issues. and now Type 2 Diabetes.

I am back on metformin again. Yick. I am also on coumidin now since they dont know what cause the PE and DVT last year. Probably be on it for the rest of my life (and I am just 30). I am sure that I will have to start insulin injections soon becuase I cannot get my sugars where they should be. *sigh* I am sure I have thyroid issues as well but tests usually come back very low "normal" .. I think "normal" should be redefined because it.. but  anyway...

PCOS sucks. there are some treatments, but so far nothing has really worked for me.

The biggest issues with PCOS to me are the weight gain/problem, acne and excess hair. I hate being fat. People tend to make assumptions of me being lazy or eating too much when in reality I am active (chasing around 6 kids and 7 dogs all day lol) and I rarely eat. When I do eat I try to be careful because I want to get the diabetes under control. The acne is embarrassing and there is nothing I can do about it. Nothing works for me and I have tried everything on the market (except proactive). I gave up but it is still not a pretty look with the pimples. The extra hair sucks. I have to wax my eyebrows every few weeks and I have to shave my chin and neck every day if I don't want stubble showing. Waxing is too painfull for no longer than it lasts. I hate my hairy arms but shaving them would look too funny.

PCOS is just something I have to live with though. Maybe one day they will find a cure or a treatment that works for all of the symptoms. I used to belong to Soulcysters and loved it. I may have to go back again. I stopped going to the site not long after Sarah died and just never had the desire to return. Maybe I will now.

Take care. PCOS sucks but it isnt the end of the world. :)

Date Posted: 7/17/2008 10:05 AM ET
Member Since: 7/23/2007
Posts: 1,453
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Angela,

From what I've read about PCOS is that it can be hard to diagnose. They will do a complete blood test/work up and check different levels. I've also heard that meeting 2 of 3 symptoms. This link has given me a lot of information. Also, try a search on www.webmd.com. I think I stated before that a friend of mine is doing most of this for me, and she's on vacation so my learning about this is slow right now. I was told depending on your OB/GYN he might send you to a specialist, but usually your GYNO can help you out. Like L said, if you aren't trying to concieve then being on BC is the best thing. If you are already on that then proceding with finding out is really up to you.

If you get pregnant with PCOS you are lucky, esp if you didn't have to have some type of fertility treatments.  It's hard for us because personaly I'm not sure if I want to go through all the time and money for fertility treatments and then still not get pregnant. I've had miscairages and that's hard enough.

I've read that they haven't found any one diet that helps get the weight off for women with PCOS, but some studies have found a low carb diet works best.

Date Posted: 7/19/2008 1:33 PM ET
Member Since: 10/4/2007
Posts: 323
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I feel that I may not be a 'wealth of knowledge' here, but I will share my experience.

I'm 23 years old. I was diagnosed with PCOS at 16. I was on a BCP and Glucophage for a year or so, but when I turned 18 I lost my insurance, so there went the Glucophage. I had several cysts 'rupture' and my gynecologist said my ovaries looked as if there was a 'string of pearls' strung along each one. After trying to conceive for almost a year naturally, getting pregnant, and having a miscarriage after two months of pregnancy, I pretty much gave up, seeing how my (not-so-well-informed) doctor had told me at 16 that I would be infertile due to the PCOS. How he figured that, I'll never know. On my 21st birthday (8 months after miscarriage), I conceived and had my daughter 9 months later. It is possible to have kids without intervention if you have PCOS, but after reading some of the stories on soulcysters/etc, I think I must be blessed and I thank my stars every day for my daughter.

Good luck with whatever course you decide to take and always remember to think positive, even when the chips are down.



Last Edited on: 7/19/08 1:37 PM ET - Total times edited: 2
L. G. (L)
Date Posted: 7/20/2008 3:27 AM ET
Member Since: 9/5/2005
Posts: 12,412
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Angela, a reproductive endocrinologist is the best type of doc to see.  They will check everything, and will probably send you for ultrasound to see if you have cysts.  Based on what you have written here, I'll bet you have it, as you have many of the symptoms.

 Jessie, the only comfort I have in having PCOS is knowing I'm not alone.  Only those with PCOS really know what a terrible disease it is to deal with.  As if it's not bad enough being fat, do we have to be hairy too?  I mean - what kind of cruel joke is this??? :p  Pluse the terrible PMS, and messed up hormore levels - It just sucks all the way around.

I am glad that they do have a diagnosis for it now, though.  When I was a teen, it hadn't been discovered yet.  At least now young girls with PCOS can get help.

 

 



Last Edited on: 7/20/08 3:33 AM ET - Total times edited: 1
Date Posted: 7/21/2008 9:51 PM ET
Member Since: 5/16/2007
Posts: 245
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I forgot to mention I was put on the Metformin b/c I am insulin resistant (IR).  PCOS can be very difficult to diagnose.  Before my diagnosis, I went to one dr who told me I was making a big deal out of nothing (weight, very painful/heavy periods, acne, etc) and sent me home with a diet and told me every woman goes through it I was just making more out of it.  I was so upset and discouraged.  I swore I would never go to a dr for that again.  I had myself convinced that maybe I was just being a big baby and I should just suck it up and deal with it.  Then I realized that I was the one that was dealing with everything, it was not my imagination, and by me not seeking another dr, I was just hurting myself.  So hang in there.  Learn what you can and see a dr.  See more if you need to.  Also, when I was trying to conceive I used the Ovusoft software to track my cycles and they have some good forums there also.

 

Date Posted: 7/21/2008 10:44 PM ET
Member Since: 7/23/2007
Posts: 1,453
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Angie I agree. I went to my OB/GYN when my son was about 18 months. I was getting on the pill and I had told him I wanted a a complete blood work up. He asked why and I told him my friend (the PA) told me I had a lot of the symptoms of having one; I think this is what set me in. I felt he thought I was just making crap up and he new better than some PA. . . Anyway he asked what those would be, I told him that I had thinning hair, I was tired all the time, I had really hard loosing and keeping off weight, etc. He told me "Stop eating breads, pastas, sugars, and don't drink sodas" I told him I didn't drink but one soda a week MAYBE, I hardly ever had any sugars, and that I had been cutting way back on my pastas and breads, he looked at me like I was a BIG FAT LAZY LIAR.

I didn't know what to do because while I was pregnant with son I absolutely LOVED him (my dr), but the 2 times I went after that I wasn't happy with him. I thought maybe I just took it the wrong way so I didn't go back and push for more things to be done. Now I know I ws only hurting myself, I so wish I would have went to someone else for a second opinion. He didn't even bring up the fact that it could be a host of other things. Didn't go into details about what was up with me, nothing. I strongly suggest everyone get as many opinions as they feel necessary.

L. G. (L)
Date Posted: 7/22/2008 3:52 AM ET
Member Since: 9/5/2005
Posts: 12,412
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Yes, yes, yes!!  Try to find an OB/GYN who specializes in fertility issues, or find a reproductive endocrinologist - they will know about PCOS and won't look at you like you have two heads!  I cannot tell you how many doctors I went to until I finally self-diagnosed and found a specialist myself.  I just wish I had found him 10-15 years earlier!!

Date Posted: 8/10/2008 4:10 PM ET
Member Since: 12/11/2005
Posts: 298
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I am so happy to have found this. All the useful links. I will tell my story later I am running out of time for today. I will be back.

I figured out in 2006 that I have PCOS. On a message board of all places. I had 3 Miscarriages last year. I believe I have had it since Middle School. I have a period once every few months and the last time I saw my DR she said she believed I had it. (When I see her in Sept I'm going to ask her to run tests and stuff) My Triglicerides are high and just keep getting higher. I have all kinds of facial hair.

I really started to notice problems after I had my daughter and while I was pregnant I got a beard!! I have even wrose now. I get PMS for a month before I start my period! A whole month! I get horrible cravings too! All the time. I feel like I might die if I don't get whatever the craving is.

I have finally lost 30 pounds since last fall. And I keep eating the same except no bacon! I hope to get done to my prepregnancy weight. I would really love to have another child. I lost a lot of weight while I was pregnant. I didn't gain until after I had my daughter.

I have horrible cramps. Bad clotting.

I just really dread 'that time of the month' or in my case year.

I'm really happy to have found ladies again that have the same problems as I do.

Also I can't take bc because it messes with my vision. And I can't take motrin for my cramps.

I am only 24. My husband and I are going to start trying for a baby but I believe after a year we will give up and I will seek a hysterectomy. I've wanted one for a long time because I get cysts and other fun things. My mom had had to have one and becauseof poor health care (that was the best where we lived) she had 65 pounds of tumors on her ovaries and all kinds of trouble.

I also have acne all over my face that seems to never go away.

Thatnks for all the great info and sharing your stories.



Last Edited on: 8/11/08 12:55 PM ET - Total times edited: 2
Date Posted: 8/16/2008 10:28 PM ET
Member Since: 7/23/2007
Posts: 1,453
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Stephanie, thank YOU for sharing your story! It is great to have women that know what you are going through and able to lend support; even if it's just an ear. I hope when you go to your doctor you figure out if you have it or not. If you really want another child there are plenty of meds you can try to help with that esp if you do have PCOS.

Please keep us informed on what your doctor says!

Date Posted: 8/19/2008 6:56 AM ET
Member Since: 3/23/2008
Posts: 1,610
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Have any of you had great success with weight loss? I feel like I have tried everything and nothing much works. I am stuck at 100 pounds heavier than I should be (and want to be).

As for the facial hair, have any of you tried vaniqua (sp?)? I was given a script by an endochronologist (sp?again) but never filled it. I would ask my FP for it if it has worked for any of you. Right now I just shave and feel so unlady-like.

Have any of you found an acne treatment that works? I haven't yet. The only thing I can think of I haven't tried is ProActive.

It is great support to know there is a diagnosis for this horrible condition we can do nothing about. I am so thankful there are people here at my new favorite website/forum that know what I go through.

Hugs gals!

Date Posted: 8/19/2008 11:25 PM ET
Member Since: 7/23/2007
Posts: 1,453
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Jessi I have great stories of women who have taken Metformin and have lost a lot of weight.

I have a couple of questions for you ladies.

1) Have any of you concieved (even if it was a loss) on Metformin alone? How long did it take?

2) What were the worst side effects for you?

3) How did you deal with those?

Date Posted: 8/22/2008 2:44 AM ET
Member Since: 7/23/2007
Posts: 1,453
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I know this is OT but I have to vent before bed and I really didn't feel like putting this in CMT.....

I often stick my foot in my mouth, wish I would have said something in a different tone, used a different word, etc but when it comes to sensitive things I know little or nothing about I try to keep my mouth closed.

I have fertility issues. I do not expect anyone to know that (very few actually do). I do not expect anyone to know about infertility in general. I do not expect anyone to know about the condition I have (PCOS).  So when people ask questions or make comments I try to answer them and/or correct them as nicely, honestly, and with as much information as I can. However over the last week or so I've gotten so sick of the things that come out of other people's mouths!

I am so sick of hearing "Oh your still young, you have plenty of time to get pregnant!" Yes I am young (early 20s) but my husband is 30. Just because the "norm" now days is for couples to have kids well into their 30s or even 40s doesn't mean that is what everyone wants to do. Hubby and I actually wanted to be done in the next 3 years or so. I can maybe understand if it's someone that doesn't know I have IF issues but coming from people that know I have trouble....HELLO I'm having issues out the wazoo now can you imagine in 5 or 10 years???

I have always wanted a big family - always. I am so sick of people telling me "wait until you have more than 1 and you'll change your mind about that!" Yes I know more than one child is hard but just because I only have one doesn't mean I don't know anything. I never said having more than one or two would be a walk in the park! It's hard when "friends" tell me this knowing that I might not have the option of a big family. Just because you can't/don't want to handle your 3 kids doesn't mean I wouldn't be able to/don't want to!

And most recently I'm sick of people telling me I can't be inferitle!!! Today I was talking to another mom who is having troubles TTC. A lady across the table informed us that we couldn't be infertile because we already had a child. I explained to her that we weren't saying we were barren or anything, just that we had fertility problems. She said "well if you've already had a child you can't be inferitle. There are a lot of women that are really inferitle that would be sad to hear you say that." I told her as politely as I could what the deffinition of infertility is. She looks at the two of us says whatever and walks away. WHATEVER?!?! You just informed me I had no idea what I was talking about when it came to my own reproductive system and all you have to say is WHATEVER?

Bitching done - thanks.

Date Posted: 8/22/2008 4:02 AM ET
Member Since: 3/23/2008
Posts: 1,610
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Sarah,

I have heard that about Met too. I guess I need to suck it up and start taking my pills again.

1.) I did not concieve on just Met alone. Though, My first two pregnancies were "natural". I didn't take anything and we weren't trying, just not preventing. Each took about 5 years of unprotected nookie to produce a baby. The third pregnancy was with invitro because I had decided to stop at 2. After we lost Sarah, IVF was our best and cheapest bet for another baby (or two in this case!).

2.) The absolute worst side effect for me is the diarrhea. It hits me about 8 hours after taking my pill (on a good day - once I have been on it for a little while, it will mess me up for an entire day or two). That is the most notible and uncomfortable side effect. I don't notice much else though. Have so many issues anyway, I never know what is a symptom and what is a side effect *shrug*

3.) I am not great at dealing with it. I tried immodium for a while and still do when it is really bad. But even it gets to the point it stops working. Body gets used to it. The only other way I know how to deal with it is to stop taking it for a few days or a week to give my GI tract time to settle down.

I am so sorry to hear about what a rotten day you had. People just have no idea how to stay out of other peoples' business. It was amazing when I was pregnant with the twins, that when I said I was having twins, so many would ask "natural or fertility treatments" ... umm How about none of your business??!! Or offer "advice" about things when it wasn't asked for nor wanted. I am not one to stick my nose into others personal lives even my close friends lives. It amazes me how many others do.

Until more serious and further research goes into PCOS, they haven't even scratched the surface so far IMO, we aren't going to have great answers and will have to put up with stupid people often. *sigh* not the best but.. *shrug*

i am sorry for your horrible day. Just be glad you'll most likely never see that "whatever" old lady again.

Date Posted: 8/24/2008 9:59 AM ET
Member Since: 7/23/2007
Posts: 1,453
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Jessi - I know each person is different and this could just be my body adjusting to the Met but I thought I'd let you know. The first two days I took it I did just like they say - take it with a meal. So I'd eat half of my meal (breakfast or dinner) then take the pill and eat the other half. Yesterday and this morning I ate waited about an hour took the pill waited another 20mins or so then ate a fruit. I had NO diarrhea. I think I might take it in the middle of my dinner tonight to see if it's me adjusting or if this really helps me out!

The diarrhea is the hardest for me too. That and I feel SO tired. I get up about 7-7:30 every morning but since on Met it is so hard for me to get up and going. I take Met about 8:30-9 and am exhausted. I don't start feeling normal until about 3 or 4. I take my second dose (500mg) around 7. I don't know if I fight through the fatigue because it's too early for bed or what but that one doesn't seem to make me as sleep I just have a hard time waking up. Hubby suggested taking it later to help me fall asleep but I think it'd be even harder for me to wake up then. Maybe I need to move my morning dose back a bit until I'm more awake?

Date Posted: 8/26/2008 3:48 AM ET
Member Since: 3/23/2008
Posts: 1,610
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I haven't started taking mine again. I think I'll try taking it with food, maybe that will help. Thanks for the tip!

I am always tired lol (6 kids, working nights and a schedule that would send most people to the psych ward lol) So I don't know if I can attribute tiredness to the pills.

I keep telling myself I need to get back into taking my meds and I am good for about a week then slack off and forget *sigh* I'll try to finish out the month taking my pills (starting in the morning) and see if I can manage to do the whole month of Sept :) Thanks for the push to try again. It can get pretty depressing.

Date Posted: 8/26/2008 11:14 PM ET
Member Since: 7/23/2007
Posts: 1,453
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If you ever need to talk/vent/reminder feel free to PM me! I am happy to help. Good luck!

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