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Topic: Restless Leg Syndrome

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Subject: Restless Leg Syndrome
Date Posted: 1/26/2009 10:20 AM ET
Member Since: 4/18/2008
Posts: 9,632
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I have suffered with this for years. Recently medication was switched. Am having a difficult time adjusting to it.

Do you have RLS?

What do you do or take for it?

Date Posted: 1/26/2009 12:51 PM ET
Member Since: 12/23/2005
Posts: 3,012
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I'm not taking anything for it yet as it doesn't happen to me on a regular enough basis.  But when it does happen it is hell.  I get up and walk.  I take Alleve, but I don't know if that helps.

Date Posted: 1/26/2009 5:22 PM ET
Member Since: 10/9/2007
Posts: 812
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I just turned 42, and prior to this last year, I only experienced RLS when I was pregnant. 

I now have been having symptoms while riding in the car, and driving and at night.  I only experience the problems about 1 in every 12 nights, though.  I am going to talk to my Dr about it.  I have an appointment next week.

It is a terrible, out of control feeling though.  I sympathize with anyone who suffers from this problem on a continual basis!

Date Posted: 1/27/2009 8:11 AM ET
Member Since: 4/18/2008
Posts: 9,632
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Barbara and Lisa, Thanks for your response.

I have had RLS for years and couldn't seem to make anyone including doctors understand. I described the feeling to one neurologist as 'weird.' He repeated 'weird' back to me with a down-turned mouth and such condescending tone to his voice that I walked out and never returned to him.  Strangely enough the first doctor to know what I was talking about was a chiropractor!!

It started out occasionally but is now everyday or night and sometimes more than once a day even with medication. I am only suppose to take my meds once a day in the evening and right now I am ready to SCREAM!!!!  Don't seem to be adjusting well to the new meds.

There is a website.  rls.com  I think. Haven't visited it for some time. Probably should.

 

Subject: It run in my husbands family
Date Posted: 1/27/2009 12:08 PM ET
Member Since: 3/6/2006
Posts: 1,068
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His mother has it . Years ago his father never believed it was real. When my husband  and some of the other siblings told him they had it also he finally believed them. Our daughters have it also. I  have to sleep in a seperate room from him because the constant moving when it bothers him. He does not take meds. for it. My mother in law told me going to the spa in the hot tub jets helped her. Getting exercise sometimes helps my husband. 

Date Posted: 1/27/2009 3:14 PM ET
Member Since: 7/3/2008
Posts: 284
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I have it too.  Mine didn't start with my legs though.  In my mid-twenties, my head and neck start to get jerky when I was tired.  For a long time, no one could figure out what was wrong.  Now it's everywhere, including my legs.  It happens when I get over tired or if I'm riding in a car or plane for a long time.

I've been taking .5 mg of Requip each night.  I used to be able to just take it every few days...not anymore.  A while back my doctor accidently prescribed it as 2mg, and I thought I was going to die!  I literally felt like I was trapped in my own body that I couldn't move!

I'm not sure what else is out there, as far as meds go.  I do know that requip is one of the older meds for this, according to my doc.

T. -
Date Posted: 1/27/2009 3:59 PM ET
Member Since: 1/21/2007
Posts: 9,989
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Hey everyone!  I have had 2 sleep studies and I have severe RLS.  I can't take the prescription meds for it because of some other medical conditions.  I have tried for years to find relief, but until last November, no luck.  I stumbled across an article that suggested taking a combination of magnesium, zinc and calcium supplements daily for RLS--so I picked up a bottle (they have all 3 together in a supplement)--I really doubted it would help. 

Within a week--no more RLS.  No more twitching legs.  No more having to stretch my legs out because the muscles were painful and cramping up.  No more having to get out of bed and walk around just to relieve the symptoms.  I told myself that this was too easy--no way could 3 minterals help this much, so I stopped taking them for 2 days--and the RLS came back immediately.  I take my supplement every single night now---I ran out a few weeks ago and wasn't able to get to the store for 4 days---it was a miserable 3 of 4 days. 

The supplements aren't expensive either--around $6 for a month's worth.

  Try it and let me know if it helps you.

Date Posted: 1/27/2009 6:45 PM ET
Member Since: 4/18/2008
Posts: 9,632
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T.G.

Thanks for the information. I will try that.

I was taking Mirapex and getting samples from my Dr. He changed me over to Requip because he wasn't getting Mirapex samples anymore. I am having a hard time adjusting to the Requip.

Does anyone get twitchy arms? I do, but usually in the morning. When both my arms and legs start flailinin, I wonder who might call for the straight jacket!!

T. -
Date Posted: 1/27/2009 9:40 PM ET
Member Since: 1/21/2007
Posts: 9,989
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I don't get twitch "arms," but I get the same feeling in my shoulders sometimes--not since I started the supplements, tho.  It was miserable and you can't "walk" on your arms---I would try everything to get the feeling to go away--blue stuff, Ben Gay, even Vicodin. 

 

Good luck!

T. -
Date Posted: 1/30/2009 7:22 PM ET
Member Since: 1/21/2007
Posts: 9,989
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Did anyone try the supplements yet?

Date Posted: 1/30/2009 8:04 PM ET
Member Since: 4/18/2008
Posts: 9,632
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Haven't been to Drug store yet, but plan on getting the supplements.

T. -
Date Posted: 2/16/2009 7:00 PM ET
Member Since: 1/21/2007
Posts: 9,989
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Clara, I was wondering if you had a chance to try the supplements.

Date Posted: 2/19/2009 5:36 PM ET
Member Since: 10/9/2007
Posts: 812
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I've been taking Mirapex for 2 weeks, and have not had any symptoms in 12 days. I hope it continues to work for me.
Date Posted: 3/1/2009 8:22 PM ET
Member Since: 8/11/2006
Posts: 6,597
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My symptoms of RLS disappeared after it was discovered that I was severely anemic. A round of iron pills helped tremendously, and a hysterectomy several years after that helped even more!

Subject: RLS
Date Posted: 3/20/2009 11:05 PM ET
Member Since: 1/10/2009
Posts: 1,731
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Hi All,

Sent out a couple PMs, but since I see there are so many posts, thought I would post, too.  Didn't know what I had but told my doctor it felt like I had bugs crawling inside my legs.  Said it must be what the DTs feel like for a drunk.

I was sent to a sleep clinic for sleep apnea.  The tech said I did not have that, but my RLS was off the charts.  She asked if my legs moved that much every night.  I didn't know they moved at all, but I couldn't sleep.  The doctor who sent me gave me iron, after doing blood tests.  I really didn't have much relief.  After I retired and returned to Ks to my doctor here(internal medicine), he put me on Ropinirole (3mg now) after trying different doses.  Makes a difference for me.

Sweets, especially chocolate, after about 6 p.m. make it bad.  Does this info help anyone?

 

Reading makes me smile.

Date Posted: 3/21/2009 1:22 PM ET
Member Since: 4/18/2008
Posts: 9,632
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I take iron everyday and it doesn't help my RLS. Currently taking Requip which works if I take it by a certain time and on an empty stomach and.......... When I was taking Mirapex, I had better results.

One of these days I'm going to remember to get the supplements and try them.

First I've heard about sweets at night. Will give it a try, but it will difficult.

Date Posted: 4/10/2009 3:37 PM ET
Member Since: 4/23/2008
Posts: 1,757
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Just saw this thread. I have mild RLS.  It doesn't bother me a lot, just when I'm over-tired or from time to time for whatever reason.  It bothers DH, though. He says a lot of nights my legs move constantly when I sleep.  (This doesn't wake me up, though, LOL!)  Anyway, I'm wondering what the ratios  or recommended dosages are for the supplements (magnesium, calcium and zinc) or specific brand names.  Or, are the supplements marked as some kind of "RLS" relief?  I currently take a multi-vitamin which I'm sure has all these minerals in it, plus I take an extra calcium supplment every day and zinc as needed (when I feel a cold coming on ir isomeone in the family has been sick, etc., to boost my immunity).  I'm wondering if I should be taking more (and if it's safe to take more).  I certainly don't need Rx at this point, but I don't mind doing what I can to minimize bouts with RLS, which is sooooooooo annyoing.  LOL!

T. -
Date Posted: 4/10/2009 9:36 PM ET
Member Since: 1/21/2007
Posts: 9,989
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The supplement I am taking right now is one that I get at Dollar General for $2 a bottle.  The brand name is Good Health Natural Calcium, Magnesium, and Zinc.  Bone Health. 60 caplets.  It contains calcium 1000, magnesium 400 mg and zinc 15 mg per caplet.  When I first started, I took 2 every night.  I've found out that I can get by on one every night.  If I skip a night or two, I can definitely tell the difference. 

Before I found these cheapers supplements I took one that just had the mag and zinc.  It worked well, too, but the added calcium is a good thing since I am getting older. 

Hope you try them and get some relief.

Tammy

Date Posted: 4/10/2009 9:49 PM ET
Member Since: 4/23/2008
Posts: 1,757
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Tammy - Thanks so much!  I'll look for it the next time I'm at the drug store!  Lots of good information here.  Funny how it runs in families.  My mother has it, and so does one of my 4 kids (my 19-year-old son).  I'm fortunate in that it only really is an issue for me if I'm over-tired.  Riding in a car a lot of times will trigger it too.  Perhaps it's because I get sleeping riding.  I'm also fortunate in that for me right now, it's only annoying.  It usually doesn't disrupt my sleep.  When it acts up, it'll just bother me until I'm able to fall asleep, although sometimes the twitchy legs make that difficult!  Like I said, though, it really bugs my DH, who's a light sleeper.  I'm sorry that the rest of you suffer from it, but it's good to have people here to talk to! 

Date Posted: 4/11/2009 11:40 AM ET
Member Since: 11/28/2007
Posts: 5,269
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There is a big ad in this weeks TV Guide (probably other places, too, but I saw it there) about Mirapex, which is prescribed for Restless Leg Syndrom.  The FDA evidently found some misleading info about it it their ads.  In a nutshell, they say it can cause you to fall asleep without warning during normal daily activities, like while driving, and it can also cause hallucinations.  I'm only posting this in case some of you who have RLS might be taking this medication, and if so you should just take note of these possible side effects and be a little wary.

Date Posted: 4/11/2009 2:53 PM ET
Member Since: 4/18/2008
Posts: 9,632
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Tammy, thank you for the info on the supplements.

Stephanie, I took Mirapex for years with no problems. One of the lucky ones i guess. My understanding is that Mirapex is about to go generic. I'm taking Requip now. It's OK, but I liked the results of Mirapex better.

T. -
Date Posted: 4/14/2009 11:06 PM ET
Member Since: 1/21/2007
Posts: 9,989
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Shelley, I hope the supplements work for you.  I'm on so much other medication, I'm glad they work for me because I would hate to be on another RX.  I've had 2 sleep studies done and both showed excessive leg movement.  I'm not going to have a sleep study done just for RLS, but I KNOW it is better with the supplements. 

Date Posted: 8/15/2009 10:51 PM ET
Member Since: 5/13/2008
Posts: 497
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Just last week, there was a brief mention in our paper of vinegar helping with RLS. I had it when I was  pregnant, and it does suck. I do feel for you.

Date Posted: 8/16/2009 8:31 PM ET
Member Since: 9/30/2007
Posts: 5,717
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I know it sounds crazy, but I have had several people tell me that if you have trouble with leg cramps at night or RLS to put a bar of soap (but not Dial or Dove) under the bottom sheet in an area where your legs will be and that will do the trick.  Nobody knows why it works, but it just does.  I think the bar is supposed to be unwrapped. 

 

Date Posted: 9/13/2009 4:40 PM ET
Member Since: 10/21/2007
Posts: 3,430
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I have problems with recurring leg cramps & muscle twitching in my legs and the only thing that works consistently is vitamin E.  I have to take 800 IUs daily or more to keep the leg cramps at bay.  When I go without my vitamin E for a while, I start getting a creepy crawly sensation in my legs.  If you're trying the supplements mentioned by TG, you might want to try vitamin E, too.

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