My daughter has Rett Syndrome, so this book has been on my reading list for a long time. I thought it was a well written book, very much about the author's own journey of acceptance of her disabled daughter, Kat. It mirrored a lot of the same feelings that I have, but I noticed that I sometimes have very different feelings from the author. I know this book spans 24 years of Kat's life, but I'm impressed how often the author got to "get away" on outdoor adventures often with her other typical children, always finding a babysitter to take care of Kat for days on end. Child care, especially overnight care, always seems like an unattainable dream for me.
I read this book several years ago after my daughter had been diagnosed with Rett Syndrome. There is a very brief update on Kathyrn, but it is the same book as Grief Dancers and I was disappointed that it was retitled to appear as something new.
The author's writing is both beautiful and nakedly honest. For parents of children struggling with illness or disability, it is an inspiring read that I highly recommend. For readers who do not have personal experience with a disabled loved one, this story sheds light on the inner most feelings of a mother struggling to cope, accept and love her damaged child.