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Topic: lewy body

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Subject: lewy body
Date Posted: 10/9/2008 4:23 PM ET
Member Since: 10/8/2005
Posts: 1,375
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My grandmother has this she has Alzheimer's and Parkison type symptoms   I take care of my grandmother with my mom and it is a full time job

Anyone else out there that has a relative with this syndrome

Linda S. (thk) - ,
Date Posted: 11/13/2008 7:22 PM ET
Member Since: 10/4/2006
Posts: 317
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I was in a support group with a lady whose mother had this.  She did not lose memory, but had constant and spectacular hallucinations.  Ex:  Talking German shepherd dogs testifying for the FBI.

Date Posted: 11/14/2008 11:09 PM ET
Member Since: 10/8/2005
Posts: 1,375
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My grandmother also has these spectacular hallucinations. I have been a madam of a prositution house and a restaurant owner. And before you ask I am neither.

Subject: Lewy Body Dementia Association
Date Posted: 1/6/2009 11:00 AM ET
Member Since: 5/9/2005
Posts: 7
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My name is Ronnie Genser and I am a past board member of the Lewy Body Dementia Association (www.lbda.org). Currently I volunteer for the LBDA as their national support group facilitator. In this capacity I work with new support group facilitators and help establish new support groups. There are currently 45 support groups across the U.S. and Canada. For a list of LBD support groups, go to

http://www.lbda.org/category/4185/local-support-groups.htm

If anyone is interested in starting a support group in their area, please send an e-mail to genser@mindspring.com and I'll be happy to invite you to the next new support group facilitator teleconference training on January 28 at 8 pm ET.

For a wealth of information about Lewy Body Dementia, go to www.lbda.org

 

Subject: Books on Lewy Body Dementia
Date Posted: 1/8/2009 11:58 AM ET
Member Since: 5/9/2005
Posts: 7
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I meant to also include in my post above a link to books on Lewy Body Dementia and Dementia Caregiving:

http://www.lbda.org/category/4114/books-on-lbd-and-dementia-caregiving.htm