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My grandmother has this she has Alzheimer's and Parkison type symptoms I take care of my grandmother with my mom and it is a full time job Anyone else out there that has a relative with this syndrome |
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I was in a support group with a lady whose mother had this. She did not lose memory, but had constant and spectacular hallucinations. Ex: Talking German shepherd dogs testifying for the FBI. |
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My grandmother also has these spectacular hallucinations. I have been a madam of a prositution house and a restaurant owner. And before you ask I am neither. |
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My name is Ronnie Genser and I am a past board member of the Lewy Body Dementia Association (www.lbda.org). Currently I volunteer for the LBDA as their national support group facilitator. In this capacity I work with new support group facilitators and help establish new support groups. There are currently 45 support groups across the U.S. and Canada. For a list of LBD support groups, go to http://www.lbda.org/category/4185/local-support-groups.htm If anyone is interested in starting a support group in their area, please send an e-mail to genser@mindspring.com and I'll be happy to invite you to the next new support group facilitator teleconference training on January 28 at 8 pm ET. For a wealth of information about Lewy Body Dementia, go to www.lbda.org
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I meant to also include in my post above a link to books on Lewy Body Dementia and Dementia Caregiving: http://www.lbda.org/category/4114/books-on-lbd-and-dementia-caregiving.htm |
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