Skip to main content
PBS logo
 
 

Discussion Forums - Caregivers' Forum Caregivers' Forum

Topic: Recommend a good book on MS?

Club rule - Please, if you cannot be courteous and respectful, do not post in this forum.
  Unlock Forum posting with Annual Membership.
bup avatar
Rick B. (bup) - ,
Friend of PBS-Gold medal
Subject: Recommend a good book on MS?
Date Posted: 1/6/2010 12:26 PM ET
Member Since: 11/2/2007
Posts: 2,625
Back To Top

My wife has been diagnosed with MS. It's 'mild' right now, but we've been pretty certain it was MS for a month or two.

What's a good book to learn about MS, and how to make a home comfortable for someone with MS?


Thanks.

SandyP avatar
Date Posted: 1/18/2010 2:00 AM ET
Member Since: 8/17/2005
Posts: 1,599
Back To Top

Rick it is very late here and I am beat I am going to PM you tomorrow my sister and cousin both had/have MS and as for a book I can't say but for tips I can pass some on when I am more awake......All I can say very fast is MS is never the same in two people....stress is really bad for people with MS more so than other people...And if you can afford it get her to a teaching Hospital ....more in pm I am so sorry for your wifes dx but she WILL be OK

earthschild avatar
Date Posted: 2/8/2010 5:26 PM ET
Member Since: 11/28/2009
Posts: 1
Back To Top

Rick,

Hi, Sorry to hear about your wifes diagnosis. My fiance was diagnosed with MS last May. It was quite a blow, because we never saw it coming. He is young and healthy. Luckily we caught it early and he hasn't had many complications yet. He has been on injectible meds for about 6 months and they seem to be working really well. His last MRI showed no progression. Sandy is right, keep the stress levels down and try to find a teaching hospital with a neurologist who specializes in MS. We have to travel over an hour to ours, but its well worth it.

As far as books go, we only read one so far. MS for Dummies. I know it sounds silly, but it was really helpful. It is straight and to the point. We liked that it wasn't too technical and "doom and gloom". Some of the information out there is kind of difficult to handle. It's true that everyone is affected by this disease differently. That book helped us to get educated in what we might expect without making us assume that he would be a worst case scenario.

Just take things day by day for now and stay positive.  Best of luck to you and your Wife.