"Seven years, one month, two weeks, and two days after he was born, Fanconi anemia took my son away."
Is there any way to read those words without choking up? Without *somewhat* imagining if it happened to you. I say 'somewhat' because I tried. I couldn't. People use the expression "I couldn't even imagine it" so often. Because of the types of books I read you could randomly pick out any ten reviews of adult books I've read and probably find some version of that statement. And I meant it or I wouldn't have typed it. Somehow it hits harder in a book like this though.
As with Alex: The Life of a Child, this book is hard to read. For more reasons than the death of a child although that, of course, is the worst. I can't count how many times I cried. I was reading at a steady rate until this morning when I found I could barely put the book down.
There is so much more included here than Henry dying. Besides the family in the book I mentioned above I don't know I've ever heard of stronger people than this family. What this little boy, and his family, went through, through no fault of their own, is astounding. No Mother should have to face that and no child should have to deal with it.
I felt sucj overwhelming feelings of anger while I read this. Anger? What's up with that right? Why do we have huge million dollar venues to play games yet no money to research life saving drugs, techniques and machines? Why do we may Britney Spears, Jay-Z, and Madonna millions upon millions each year and forget about everything important? Why do the atheletes and people in politics make more than they could ever spend? Why are they picking out a certain type of counter top being imported from some barely heard of place when a little girl or boy is dying?
I am in absolutely no way an advocate for "spare parts". I'm against abortion so I could never, ever be for something so disgusting. But I am for a family having a baby that is wanted to save another childs life. That is just not "spare parts". Yes, this is something that could lead to "designer babies". So DON'T let that happen. Allow the good to happen and keep the bad out. Not always possible right? It is here. With the idiotic laws in place in this country (which is becoming more ugly by the day to me) we could have laws in place to prevent having a certain sex baby or a baby with a certain eye color.
I had a lot more to say but I'm so disgusted that I need to move on to something else. Read the book and decide for yourself. But think about it first. Even if it's impossible for you, try to imagine if it was YOU and YOUR BABY....
Is there any way to read those words without choking up? Without *somewhat* imagining if it happened to you. I say 'somewhat' because I tried. I couldn't. People use the expression "I couldn't even imagine it" so often. Because of the types of books I read you could randomly pick out any ten reviews of adult books I've read and probably find some version of that statement. And I meant it or I wouldn't have typed it. Somehow it hits harder in a book like this though.
As with Alex: The Life of a Child, this book is hard to read. For more reasons than the death of a child although that, of course, is the worst. I can't count how many times I cried. I was reading at a steady rate until this morning when I found I could barely put the book down.
There is so much more included here than Henry dying. Besides the family in the book I mentioned above I don't know I've ever heard of stronger people than this family. What this little boy, and his family, went through, through no fault of their own, is astounding. No Mother should have to face that and no child should have to deal with it.
I felt sucj overwhelming feelings of anger while I read this. Anger? What's up with that right? Why do we have huge million dollar venues to play games yet no money to research life saving drugs, techniques and machines? Why do we may Britney Spears, Jay-Z, and Madonna millions upon millions each year and forget about everything important? Why do the atheletes and people in politics make more than they could ever spend? Why are they picking out a certain type of counter top being imported from some barely heard of place when a little girl or boy is dying?
I am in absolutely no way an advocate for "spare parts". I'm against abortion so I could never, ever be for something so disgusting. But I am for a family having a baby that is wanted to save another childs life. That is just not "spare parts". Yes, this is something that could lead to "designer babies". So DON'T let that happen. Allow the good to happen and keep the bad out. Not always possible right? It is here. With the idiotic laws in place in this country (which is becoming more ugly by the day to me) we could have laws in place to prevent having a certain sex baby or a baby with a certain eye color.
I had a lot more to say but I'm so disgusted that I need to move on to something else. Read the book and decide for yourself. But think about it first. Even if it's impossible for you, try to imagine if it was YOU and YOUR BABY....
